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A New Movement for People with Multiple Myeloma

June 27, 2013

CANCER RESEARCH MOVEMENT IDENTIFIES SOCIAL AND EMOTIONAL NEEDS OF PEOPLE LIVING WITH MULTIPLE MYELOMA 

 

Expanded Experience Registry created to identify social and emotional needs of people living with multiple myeloma    

WASHINGTON - (June 27, 2013) - The Cancer Support Community's Research and Training Institute has added a focus on people living with multiple myeloma to its nationwide Registry. According to the National Cancer Institute, there will be 22,350 new cases of multiple myeloma diagnosed in the U.S. this year. This type of blood cancer occurs most frequently in men and the risk of developing it increases with age. Also, multiple myeloma impacts African-Americans twice as much as other populations. The combinations of these demographics make it much more challenging to understand the entire physical, social and emotional spectrum of this disease.

Called the Cancer Experience Registry, the project has already collected the experiences of 4400 people who have volunteered to share their cancer journey by answering questions about their cancer experience. The new multiple myeloma component of the Registry is an effort to learn more about the specific social and emotional needs of this unique group.  

To support the launch of this Registry, Onyx Pharmaceuticals joined as the inaugural sponsor of this specialized research endeavor in 2012. "The development of new therapies is making multiple myeloma an increasingly treatable cancer. As an organization on the forefront of innovation, Onyx is grounded by an enduring commitment to improve the lives of those with cancer," said Pablo Cagnoni, M.D., Executive Vice President, Global R&D and Technical Operations of Onyx Pharmaceuticals, Inc. "We are eager to learn more about the often-ignored social and emotional challenges that are specific to this group so that we can increase our knowledge and develop new solutions to address these needs." 

Registry members who participate in the multiple myeloma portion of the Cancer Experience Registry will answer a series of questions about their experience including questions about the patient-medical team dialogue, side effect management, cancer care planning, financial effects, the ways in which they define value and the emotional and social effects of their cancer experience. Members will be able to instantly compare their responses with others in the community and get connected to support and resources that meet their interests and needs. 

Cancer Experience Registry: Multiple Myeloma is the second Registry supported by Celgene Corporation, which joined as a sponsor in 2013. "Celgene is proud to be a partner in the Cancer Experience Registries. This program provides a unique opportunity to fully understand the patient experience. As a company committed to delivering innovative solutions to patients, we believe the Registries are critical to enhancing the delivery of quality care and furthering comprehensive therapeutic solutions for patients living with multiple myeloma and metastatic breast cancer," said Markus Renschler, MD, Corporate Vice President- Global Head of Hematology/Oncology Medical Affairs, Celgene Corporation.

In addition to the Cancer Experience Registry: Multiple Myeloma, the Cancer Support Community also has specific Registry initiatives for breast cancer and metastatic breast cancer. An annual index of findings from the Cancer Experience Registry, as well as each specialized community will be published to share the research with the cancer community at large.

"We are so pleased to be able to facilitate the transfer of this information from the voice of the patient to interventions that will impact direct clinical care" said Kim Thiboldeaux, President and CEO of the Cancer Support Community. "We are grateful to those who have selflessly shared their time and story with us and the broader cancer community, as we all strive to improve the experience of all people touched by cancer." 

The Cancer Support Community is pleased to have the Multiple Myeloma Research Foundation, the Leukemia and Lymphoma Society and the International Myeloma Foundation as generous contributors to and partners of the Cancer Experience Registry: Multiple Myeloma.

Those who have been diagnosed with multiple myeloma, or any type of cancer at any time are invited and encouraged to join the Registry by visitingwww.CancerExperienceRegistry.org.  
 
About the Cancer Support Community
 
The mission of the Cancer Support Community (CSC) is to ensure that all people impacted by cancer are empowered by knowledge, strengthened by action and sustained by community. In 2009, The Wellness Community and Gilda's Club joined forces to become the Cancer Support Community. The combined organization, with more than 50 years of collective experience, provides the highest quality social and emotional support for people impacted by cancer through a network of over 50 licensed affiliates, more than 100 satellite locations and a vibrant online community, touching more than one million people each year.

Backed by evidence that the best cancer care includes social and emotional support, the Cancer Support Community offers these services free of charge to men, women and children with any type or stage of cancer and to their loved ones. As the largest, professionally led nonprofit network of cancer support worldwide, the Cancer Support Community delivers a comprehensive menu of personalized and essential services including support groups, educational workshops, exercise, art and nutrition classes and social activities for the entire family. In 2012, CSC delivered more than $40 million in free services to patients and families. The Cancer Support Community is advancing the innovations that are becoming the standard in complete cancer care. So that no one faces cancer alone.® For more information, visitwww.CancerSupportCommunity.org

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Cancer Support Community Launches Cancer Policy Institute

June 19, 2013

WASHINGTON - (June 19, 2013) - The Cancer Support Community (CSC), an international nonprofit organization, will celebrate the promise of cancer care for the whole patient with the launch today of the Cancer Policy Institute at the Cancer Support Community. This inaugural event, held at the Newseum, will feature a keynote address by Ezekiel Emanuel, MD., Ph.D., recognition of members of Congress who have made a significant impact on cancer issues and the voice of patients and families currently engaged in the cancer journey.   

The Cancer Policy Institute at the Cancer Support Community was formed to advance the idea that all people impacted by cancer should be empowered by knowledge, strengthened by action and sustained by community. The Institute is partnering with a number of cancer advocacy organizations, think-tanks and other public policy influencers to promote comprehensive, quality cancer care that includes medical as well as social and emotional care.

 "As the ever-changing cancer landscape is becoming more complex, it is important to ensure that the voices of patients and their families are heard by Congress, regulatory agencies and state and local governments," said Kim Thiboldeaux, President and CEO of the Cancer Support Community. "We are excited to work with our advisors and advocates to ensure that no one faces cancer alone."  

A leader in the patient-centered movement in cancer care, the Cancer Support Community, formed by the union of The Wellness Community and Gilda's Club Worldwide, reaches more than one million people impacted by cancer each year with social and emotional support, wellness and educational programs, all delivered at no charge face-to-face, online and over the phone. These direct patient services, coupled with the only Research and Training Institutededicated to understanding the full cancer patient experience, position CSC to lead the charge of integrating social and emotional care into the full spectrum of the cancer care continuum.

"Re-engineering care delivery for costly chronic diseases like cancer is the key challenge in health care today. We cannot meaningfully bring down costs and improve quality in cancer care without focusing in on the patient experience - making it more seamless, more convenient and less stressful. It's great to see the Cancer Support Community making such great strides in this area," said Emanuel. 

The Cancer Policy Institute is pleased to honor the following members of Congress for their contributions at today's event:

*    Sen. Robert J. Casey Jr. (D-PA) will be awarded the Public Policy Award for Access for his work to protect access to health care, particularly for children and the elderly, and for his leadership of a bipartisan effort supporting investment in the National Institutes of Health.

*    Rep. Leonard Lance (R-NJ) will be honored with the Public Policy Award for Research for his commitment to health care issues notably his work with the Recalcitrant Cancer Act late last year.

*    Rep. Debbie Wasserman Schultz (D-FL), a breast cancer survivor, will be awarded the Public Policy Award for Leadership in recognition of her work with the Education and Awareness Requires Learning Young (EARLY) Act, a directive to create a national education campaign about breast cancer for young adults and high-risk groups. 

The Institute's staff and advisors consists of former Congressional staff, oncology health care professionals, cancer survivors and caregivers, experts in policy, law and reimbursement, as well as leaders that have worked with diverse populations in the broader cancer and health care communities. 

To learn more about the Cancer Policy Institute at the Cancer Support Community, please visit our website.   

About the Cancer Support Community

The mission of the Cancer Support Community (CSC) is to ensure that all people impacted by cancer are empowered by knowledge, strengthened by action and sustained by community. In 2009, The Wellness Community and Gilda's Club joined forces to become the Cancer Support Community. The combined organization, with more than 50 years of collective experience, provides the highest quality social and emotional support for people impacted by cancer through a network of over 50 licensed affiliates, more than 100 satellite locations and a vibrant online community, touching more than one million people each year.

Backed by evidence that the best cancer care includes social and emotional support, the Cancer Support Community offers these services free of charge to men, women and children with any type or stage of cancer and to their loved ones. As the largest, professionally led nonprofit network of cancer support worldwide, the Cancer Support Community delivers a comprehensive menu of personalized and essential services including support groups, educational workshops, exercise, art and nutrition classes and social activities for the entire family. In 2012, CSC delivered more than $40 million in free services to patients and families. The Cancer Support Community is advancing the innovations that are becoming the standard in complete cancer care. So that no one faces cancer alone.® For more information, please visitwww.cancersupportcommunity.org.
 

# # #

 

 


CANCER SUPPORT HELPLINE EXPANDS TO INCLUDE LIVE WEB CHAT

June 10, 2013

Logo
 
CANCER SUPPORT HELPLINE EXPANDS TO INCLUDE LIVE WEB CHAT

 

New live chat feature enhances The Cancer Support Community's helpline services   

Washington, D.C. - [June 10, 2013] - The Cancer Support Community, an international cancer nonprofit organization, announced today an expansion of its signature toll-free Cancer Support Helpline services to include an online live chat feature.

The live chat feature allows people seeking support during their cancer experience to reach a licensed mental health professional online in a text-based private chat room setting without making a phone call.

"We hope that this added capability of our Cancer Support Helpline will help us connect more people to professional support through mediums that are most convenient and helpful. The cancer journey can be difficult at times, and our helpline's goal is to assist people as they navigate through this experience," said Kim Thiboldeaux, President and CEO of the Cancer Support Community. 

Since its launch in April 2012, the Cancer Support Helpline has served thousands of people affected by cancer. Staffed by licensed and trained call counselors, the helpline assists recently diagnosed patients, long-time survivors, caregivers and health care professionals with over-the-phone support, treatment decision counseling, distress screening and information on national and community resources.   

The helpline's new live chat option may be particularly ideal for people who have a question about the Cancer Support Community's web resources, affiliate locations or other quick concerns and are not necessarily seeking counseling. Users may also begin their support session online and continue for more support over the phone.

The Cancer Support Helpline's live chat is available during normal helpline hours, Monday through Friday from 9 a.m. to 8 p.m. Eastern, and can be accessed here.

 
About the Cancer Support Community
 
The mission of the Cancer Support Community (CSC) is to ensure that all people impacted by cancer are empowered by knowledge, strengthened by action and sustained by community. In 2009, The Wellness Community and Gilda's Club joined forces to become the Cancer Support Community. The combined organization, with more than 50 years of collective experience, provides the highest quality social and emotional support for people impacted by cancer through a network of over 50 licensed affiliates, more than 100 satellite locations and a vibrant online community, touching more than one million people each year.

Backed by evidence that the best cancer care includes social and emotional support, the Cancer Support Community offers these services free of charge to men, women and children with any type or stage of cancer and to their loved ones. As the largest, professionally led nonprofit network of cancer support worldwide, the Cancer Support Community delivers a comprehensive menu of personalized and essential services including support groups, educational workshops, exercise, art and nutrition classes and social activities for the entire family. In 2012, CSC delivered more than $40 million in free services to patients and families. The Cancer Support Community is advancing the innovations that are becoming the standard in complete cancer care. So that no one faces cancer alone.® For more information, visitwww.CancerSupportCommunity.org


Cancer Research Movement to Identify Social and Emotional Needs of People Living with Cancer

March 21, 2013

 

CANCER RESEARCH MOVEMENT TO IDENTIFY SOCIAL AND EMOTIONAL NEEDS OF PEOPLE LIVING WITH CANCER 

 

First-ever registry of its kind provides outlet for people with cancer

   

Washington, D.C. - March 21, 2013 -The Cancer Support Community's Research and Training Institute launched a nationwide registry today that will help researchers better understand the impact of cancer on people who have or have had this disease. 
 
Called the Cancer Experience Registry, this first-of-its-kind research endeavor will collect the experiences of people who have volunteered to share their cancer journey in a 75-question survey and will connect them to a network of support and resources. 
 
The information collected from the registry will be used to develop programs to more effectively address the emotional and social needs of people affected by cancer. The Cancer Support Community's Research and Training Institute will publish an annual index of findings to share the research with the cancer community at large.
 
"We are eager to advance the cancer community's understanding of the full social and emotional impact of cancer through the Cancer Experience Registry. The insights from this research venture will help to identify the often-overlooked needs of people with cancer and their families," said Kim Thiboldeaux, President and CEO of the Cancer Support Community.
 
The survey consists of items that measure the social, emotional, spiritual and financial effects of cancer on the person diagnosed as well as his or her family. After completing the registry profile and questionnaire, members will be able to compare their responses with others in the community and will be connected to online and community-based educational resources relevant to their concerns and interests. 
 
The registry also includes separate projects designed specifically for people who have experienced breast cancer and metastatic breast cancer. These specialized communities will help to further identify the unique needs of these two groups. The Cancer Support Community will be launching other cancer-specific projects in the near future, including one for multiple myeloma to launch later this spring.
 
The Cancer Experience Registry builds on the success of the Cancer Support Community's pioneer registry, The Breast Cancer M.A.P. (Mind Affects the Physical) Project, which since inception has collected the experiences of more than 3,600 people who have been diagnosed with breast cancer.
 
Eighty-seven percent of respondents in the inaugural Breast Cancer M.A.P. Project reported that at least one social, physical or emotional issue was a moderate to very severe problem. The Institute of Medicine (IOM) 2008 report, "Cancer Care for the Whole Patient: Meeting Psychosocial Health Needs," identifies psychosocial support as a key component of complete cancer care. The full findings of the inaugural Breast Cancer M.A.P. project are available online at www.CancerSupportCommunity.org
 
"Breakthroughs in cancer treatment are helping people to live longer than ever before. As a result, the cancer community is becoming increasingly aware of the importance of social and emotional support throughout the cancer journey," said Joanne Buzaglo, Ph.D, VP of the Cancer Support Community's Research and Training Institute.
 
Anyone who has been diagnosed with cancer at any time is invited and encouraged to join the registry by visiting www.CancerExperienceRegistry.org.  
 
The Cancer Experience Registry is supported by generous grants from Celgene Corporation, Eisai Pharmaceuticals, Onyx Pharmaceuticals and Genentech.
 
About the Cancer Support Community
 
The mission of the Cancer Support Community (CSC) is to ensure that all people impacted by cancer are empowered by knowledge, strengthened by action and sustained by community. In 2009, The Wellness Community and Gilda's Club joined forces to become the Cancer Support Community. The combined organization, with more than 50 years of collective experience, provides the highest quality social and emotional support for people impacted by cancer through a network of over 50 licensed affiliates, more than 100 satellite locations and a vibrant online community, touching more than one million people each year. 
 
Backed by evidence that the best cancer care includes social and emotional support, the Cancer Support Community offers these services free of charge to men, women and children with any type or stage of cancer and to their loved ones. As the largest, professionally led nonprofit network of cancer support worldwide, the Cancer Support Community delivers a comprehensive menu of personalized and essential services including support groups, educational workshops, exercise, art and nutrition classes and social activities for the entire family. In 2011, CSC delivered more than $40 million in free services to patients and families. The Cancer Support Community is advancing the innovations that are becoming the standard in complete cancer care. So that no one faces cancer alone.®

 


CSC Data Shows Positive Results Following Screening for Cancer-Related Distress

 

CANCER SUPPORT COMMUNITY DATA SHOWS POSITIVE RESULTS FOLLOWING SCREENING FOR 
CANCER-RELATED DISTRESS  

 

Findings presented at the  

March 2013 Annual Meeting of the National Comprehensive Cancer Network®  

 

 

Hollywood, Florida (March 15, 2013) - The Research and Training Institute of the Cancer Support Community (CSC) released data today showing a significant decrease in emotional distress for people living with cancer who are screened with CSC's distress screening program, CancerSupportSource, and are linked to personalized resources. 

"Early diagnosis of and intervention for distress is related to better health outcomes and quality of life for people with cancer," says Joanne Buzaglo, PhD, Vice President of the Cancer Support Community's Research and Training Institute. "We are thrilled to demonstrate that the use of CancerSupportSource aided in the significant reduction of patients' levels of distress within 30-45 days of initial screening."

CancerSupportSource (CSS) is a comprehensive screening program that includes both a 25-question tool to help identify priority areas in which a patient feels most worried as well as a full suite of community-based resources, customized to help individuals manage their concerns.  Patients in the study who underwent screening had a 10% decrease in overall distress with a 25% reduction in the number of concerns ranked as moderate or very serious.

Data presented at the meeting showed that CSS is able to identify patients at risk for clinical depression with a high degree of certainty-equivalent to that of the Distress Thermometer, another cancer distress measurement tool.  Additional work is ongoing at the Research and Training Institute to further target the early diagnosis of depression and to evaluate the impact of distress screening and follow-up on the cost of the cancer experience.

The combined findings support the recommendation of the 2008 Institute of Medicine report, Cancer Care for the Whole Patient, that social and emotional support must be a part of the standard for comprehensive, quality cancer care and that every person with cancer should be screened for distress.

According to Christopher Gayer, PhD, director at the RTI, "The data is exciting because it supports the development and implementation of innovative approaches to help patients before their distress reaches a level that might create even more disruption in their treatment, quality of life or overall activities of daily living." 

For more information about distress screening or CancerSupportSource, please visitcancersupportcommunity.org/cancersupportsource.


About CancerSupportSource

CancerSupportSource is the first comprehensive distress screening program to integrate screening, referral and follow-up care developed with the community in mind. CancerSupportSource is a comprehensive program that not only leverages technology to screen patients for social and emotional concerns; it provides referral and follow-up care personalized for each individual. Built on a HL7 interface, CSS is web-based and has the ability to interface with electronic medical record systems.  For more information about CancerSupportSource, visitcancersupportcommunity.org/cancersupportsource.
                

About the Cancer Support Community

The mission of the Cancer Support Community (CSC) is to ensure that all people impacted by cancer are empowered by knowledge, strengthened by action and sustained by community. In 2009, The Wellness Community and Gilda's Club joined forces to become the Cancer Support Community.  The combined organization, with more than 50 years of collective experience, provides the highest quality social and emotional support for people impacted by cancer through a network of over 50 licensed affiliates, more than 100 satellite locations and a vibrant online community, touching more than one million people each year.

Backed by evidence that the best cancer care includes social and emotional support, the Cancer Support Community offers these services free of charge to men, women and children with any type or stage of cancer and to their loved ones.  As the largest, professionally led nonprofit network of cancer support worldwide, the Cancer Support Community delivers a comprehensive menu of personalized and essential services including support groups, educational workshops, exercise, art and nutrition classes and social activities for the entire family.  In 2011, CSC delivered more than $40 million in free services to patients and families.  The Cancer Support Community is advancing the innovations that are becoming the standard in complete cancer care.  So that no one faces cancer alone®.

###
 

 


Giggle With Gilda Tickets On Sale!

February 20, 2013

 

FOR IMMEDIATE RELEASE

 

Media Contacts:
Nancy Besa, Besa PR
(816) 674-4775/BesaPR@me.com
Megan Neher, MNPR
(913) 636-4945/ Megan@MNPR.biz

 

 

 

 

KC NATIVE JASON SUDEIKIS

AND THE SECOND CITY NATIONAL TOURING COMPANY

TO HEADLINE GIGGLE WITH GILDA 2013

The Midland by AMC, Sat., April 20, 2013

 (KANSAS CITY, Mo.) Tickets are on sale now for the fourth Giggle with Gilda fundraiser benefitting Gilda’s Club Kansas City. The comedy-improv benefit featuring Saturday Night Live actor and Kansas City native, Jason Sudeikis will be Saturday, April 20, 2013 at the Midland by AMC.

Sudeikis will perform with the renowned comedy improv troupe, The Second City National Touring Company of Chicago. The comedy-improv fundraising show, also featuring the gifted Kansas City entertainer, Missy Koonce, as emcee, will benefit Gilda’s Club, a Kansas City cancer support community offering support groups, educational opportunities, social events and workshops in a home-like setting. Legendary Kansas City musician Lonnie McFadden will also perform with his band, trumpet and signature tap dancing onstage.

“As a cancer survivor and Gilda’s Club board member, I couldn’t be more proud and thrilled to have our son come home to headline this event for a third time,” says Kathy Sudeikis, Overland Park resident and mother of Jason Sudeikis. “Gilda's Club's comprehensive program of support, education and knowledge is invaluable to anyone in our community facing cancer. But, because we also know that often laughter is the best medicine, there is no better way to raise funds than through this fabulous event.”  

Page two

KC NATIVE JASON SUDEIKIS

AND THE SECOND CITY NATIONAL TOURING COMPANY

TO HEADLINE GIGGLE WITH GILDA 2013

In addition to Kathy Sudeikis working on the Giggle with Gilda planning committee, Kimberly Winter Stern is chair with Elizabeth Alex serving as vice-chair of the 2013 event.

Tickets are on sale now for $80, $65 and $45. A very limited number of $200 VIP tickets, which includes access to the private after-party with special guest, Jason Sudeikis, are also available. (A portion of the VIP After-Party ticket is tax-deductible. Service and facility fees may apply.) Doors open at 6:30 p.m. and the show starts at 7:30 p.m.

All ticket levels may be purchased through GildasClubKC.org, Ticketmaster.com or The Midland Box Office, 1228 Main Street.

The evening will also include a GiggleRaffle and live auction of a once-in-a-lifetime Giggle New York Experience. The NYC package includes two tickets to the Saturday, May 4, 2013 performance of Saturday Night Live and a backstage tour given by Jason Sudeikis. 

All proceeds from Giggle with Gilda will benefit Gilda’s Club Kansas City, which is an affiliate of The Cancer Support Community. In 2012 Gilda’s Club KC officially opened its doors to become the 55 North American affiliate with the mission of ensuring that all people impacted by cancer are empowered by knowledge, strengthened by action, and sustained by community. Located at 21 W. 43rd Street in Kansas City, Mo., just northeast of the Country Club Plaza, Gilda’s Club offers social and emotional support to all people — men, women, teens, and children — living with ANY cancer, along with their families and friends, as a critical complement to their medical care. The program is always offered free of charge and the core components include support, education, healthy lifestyles, social connections, resources and referral.

For more information about Gilda’s Club Kansas City, visit GildasClubKC.org.

# # #

JASON SUDEIKIS

Jason Sudeikis grew up in Overland Park, Kansas and graduated from Shawnee Mission West. In 2003, Sudeikis was hired as a Saturday Night Live writer while performing with Second City Vegas. He became an SNL cast member in 2005 and is famous for his impersonations of Senator Joe Biden and Mitt Romney, among many others. In addition to SNL, Jason’s big-screen credits include Hall Pass (2011), Horrible Bosses (2011), and coming this August, We're the Millers, co-starring Jennifer Aniston.

THE SECOND CITY NATIONAL TOURING COMPANY

Founded in Chicago in 1959, The Second City National Touring Company has become the premier training ground for the comedy worlds best and brightest. Their alumni list reads like a who’s who of American comedy: Gilda Radner, George Wendt, Joan Rivers, John Belushi, Dan Aykroyd, Bill Murray, Martin Short, John Candy, Bonnie Hunt, Chris Farley, Mike Myers, Tina Fey, Steve Carell, Stephen Colbert and countless others.


Treat the Cancer - Treat the Distress

August 28, 2012

 

 

The Cancer Support Community is pleased to announce coverage in today’s The Wall Street Journal, highlighting CSC’s distress screening tool, CancerSupportSourceSMThis validated tool leverages technology to screen patients for social and emotional concerns and provides referral and follow-up care personalized for each individual. We, of course, wanted to share with our network this exciting coverage, and hope you’ll join us in recognizing this important step forward for all those living with cancer.
 
The article emphasizes the need for distress screening and features the Cancer Support Community as a nonprofit organization that offers support services through its more than 150 locations worldwide. As a friend of CSC, we would like to thank you for your continued support as we work together to ensure that no one faces cancer alone. We believe coverage like this highlights the important work of CSC and our affiliate network, and provides further validation that social and emotional support is just as important as medical care in the face of a cancer diagnosis.  
 
For more information visit www.cancersupportcommunity.org


Gilda's Club Kansas City Partners with CharitableHotels.org

July 18, 2012

Contact: Gail Nichols          

Phone:  816-531-5444

Email: gailnichols@gildasclubkc.org

 

FOR IMMEDIATE RELEASE

Gilda’s Club Kansas CityPartners with CharitableHotels.org

Receives Portion of Business, Leisure Travel Commission as Donation

Kansas City, MO, July 18, 2012.  Gilda’s Club Kansas City has partnered with CharitableHotels.org, the first non-profit online travel agency (OTA) in the country.  CharitableHotels.org offers travelers the same hotels and the same rates as other OTA's like Expedia and Hotels.com but instead of keeping the commission, they donate it, less their costs, to the charity of the traveler’s choice. Although most travelers now book their own hotel online, the hotel still pays a sizable commission to the OTA. Charitable Hotels is changing the game by doing something good with that commission — giving it to a good cause — instead of growing their bottom line.  And now Gilda’s Club Kansas City as a Partner Charity is eligible to receive the donation.   “We are thrilled to be a Partner Charity with CharitableHotels.org, said Gail Nichols, Executive Director of Gilda’s Club Kansas City.  There’s no work involved for us; and in our busy non-profit that was an important key to our involvement.” 

The founder of CharitableHotels.org, Doug Gamble, agrees.  “We know that conventional fund raising can be inefficient, requiring lots of staff and work, and that roughly 20% of donations are used to generate more donations.  Add to that the current economic climate, and you have a very difficult situation for generating crucial funds.  It is in this environment that the idea for Charitable Hotels emerged,” explains Gamble.

CharitableHotel.org works just like any other OTA.  Travelers book their travel at CharitableHotels.org, where they will find the same hotels -- and rates -- as on Hotels.com, Expedia, Orbitz, Travelocity, etc.  Next, the hotel pays the negotiated commission to CharitableHotels.org.  No additional fee is added to the traveler’s bill.  After the traveler’s stay, the traveler receives an email telling them the donation amount generated by their stay.  Every six months, Gilda’s Club Kansas City receives the donation from CharitableHotels.org.  At the end of the year CharitableHotels.org sends the traveler an email showing the total dollar amount donated as a result of their annual travels.  A transaction number is assigned allowing the donation to be tracked.

CharitableHotels.org is America’s first non-profit Online Travel Agency.  It was founded in January 2012 and is located in Kansas City, MO.  For more information about CharitableHotels.org, visit http://charitablehotels.org  or http://www.facebook.com/#!/CharitableHotels

The mission of Gilda's Club Kansas City, an affiliate of the Cancer Support Community, is to ensure that all people impacted by cancer are empowered by knowledge, strengthened by action and sustained by community. We do this by creating a welcoming community of support for everyone living with cancer—men, women, teens and children—along with their families and friends. Our innovative program is an essential complement to medical care. Completely free of charge and nonprofit, Gilda's Club offers support groups, networking groups, lectures, workshops, education and social events in a non-residential, home-like setting.


MEETING THE NEEDS OF THE WHOLE PATIENT IN CANCER CARE

May 11, 2012

“MEETING THE NEEDS OF THE WHOLE PATIENT IN CANCER CARE”

Cancer Support Community and House Cancer Caucus
host Capitol Hill Briefing.

Washington, DC (May 8, 2012) The Cancer Support Community (CSC) and the House Cancer Caucus joined forces today on Capitol Hill to highlight the need for social and emotional support services for those touched by cancer.

The luncheon briefing entitled “Meeting the Needs of the Whole Patient in Cancer Care.” brought together representatives from the Institute of Medicine, the American College of Surgeons Commission on Cancer, leading researchers in the field and an ovarian cancer survivor, to discuss how the integration of psychosocial services into the medical standard of care in cancer not only improves patient outcomes and optimizes quality, but may also provide cost-savings to the healthcare system.

According to a 2007 IOM report, Cancer Care for the Whole Patient: Meeting Psychosocial Health Needs, screening cancer patients for psychosocial distress is essential in quality cancer care. While between one-third and one-half of all people with cancer have some level of distress, screening and follow-up is more the exception than the rule.

President and CEO of the Cancer Support Community, Kim Thiboldeaux, kicked off the briefing by noting that “We know that our services have been a lifeline to the thousands of cancer survivors across the country. CSC provides over $40 million in free emotional and social support that significantly improves the cancer experience for patients and their loved ones. We look forward to the day when patients in the U.S. receive care as an integrated part of their cancer treatment.”

One of the briefing’s speakers, Dr. Barbara L. Andersen of the Department of Psychology at The Ohio State University, noted that her studies show that psychosocial services allow patients to better manage their symptoms of depression and anxiety, and reduce their risk of recurrence.

Representative Lois Capps (D-CA), Co-Chair, House Cancer Caucus shared, “We have made tremendous progress in the fight against cancer, but we still have a long way to go. While we must continue to modernize our efforts at developing treatments and cures, we must also focus on mitigating both the physical and psychosocial effects of cancer treatments on the patient and his or her family. Far too often, treatment for cancer focuses exclusively on killing the cancer cells and we forget about the harsh effects of chemotherapy and the emotional toll of the disease.”


About the Cancer Support Community
The mission of the Cancer Support Community ("CSC") is to ensure that all people impacted by cancer are empowered by knowledge, strengthened by action and sustained by community. In 2009, The Wellness Community and Gilda's Club joined forces to become the Cancer Support Community. The combined organization, with more than 50 years of collective experience, provides the highest quality social and emotional support for people impacted by cancer through a network of 56 licensed affiliates, more than 100 satellite locations, and a vibrant online community, touching more than one million people each year.

Backed by evidence that the best cancer care includes social and emotional support, the Cancer Support Community offers these services free of charge to men, women, and children with any type or stage of cancer, and to their loved ones. As the largest, professionally led, nonprofit network of cancer support worldwide, the Cancer Support Community delivers a comprehensive menu of personalized and essential services including support groups, educational workshops, exercise, art and nutrition classes, and social activities for the entire family. In 2011, CSC delivered more than $40 million in free services to patients and families. The Cancer Support Community is advancing the innovations that are becoming the standard in complete cancer
care.

For more information, visit www.CancerSupportCommunity.org.
 


CSC Launches Open to Options

May 09, 2012

 

Open to Options Logo
WASHINGTON, D.C. and THOUSAND OAKS, Calif. (May 9, 2012) – The Cancer Support Community (CSC) and the Amgen Foundation today announced the national launch of  Open to OptionsTM, a program designed  to bridge the communications gap between physicians and patients and inspire patient confidence in making treatment decisions.  Open to Options provides professional counselors who work with patients to formulate a list of personalized questions and concerns to be taken into the oncologist’s office. 
 
“The number and complexity of options for treating cancer can be overwhelming for patients,” said Vicki Kennedy, Vice President of Program Development & Delivery at the CSC.  “The goal of Open to Options is to help people affected by all cancers evaluate their options so they can feel more confident and communicate clearly with their doctor so a decision is made that best fits their individual desires and goals.”
 
The Open to Options program is available through its Cancer Support Helpline at 
1-888-793-9355, through select affiliate locations and by visitinghttp://www.cancersupportcommunity.org/open2options.  The phone consultation is offered in both English and Spanish and takes approximately 45-60 minutes. 
 
“We are delighted to support the Open to Options program as part of our ongoing commitment to empowering patients to take an active role in their care,” said Jean Lim Terra, president of the Amgen Foundation.  “The resources that the Cancer Support Community provides individuals and families helps to ensure that those affected by cancer have the knowledge and support they need to make the right decisions at the right time.”
 
The program was created in response to CSC research that found the majority of patients feel unprepared to make informed decisions about their cancer care.  A CSC pilot study funded by the Centers for Disease Control and Prevention found that 9 out of 10 patients felt that the list of questions, concerns and expectations contributed to a more productive appointment with their doctor and that the oncologist answered most of their questions.  The study also showed:

• A decrease in anxiety about the appointment for most patients
• Repeat use of the tools and techniques learned
• Patient and physician satisfaction
 
“Open to Options helped me prioritize my questions and concerns in a concise, logical order to help me optimize my time with the oncologist,” said Trish H., a multiple myeloma patient who participated in the Open to Options pilot.  “When I went into his office, I had my concerns printed out and when I left the appointment I knew that I had decided on the treatment option that was right for me.”
 
About the Cancer Support Community
Backed by evidence that the best cancer care includes emotional and social support, the Cancer Support Community offers these services to all people affected by cancer. Likely the largest professionally-led network of cancer support worldwide, the organization delivers a comprehensive menu of personalized and essential services. Because no cancer care plan is complete without emotional and social support, the Cancer Support Community has a vibrant network of community-based centers and online services run by trained and licensed professionals. For more information, visitwww.CancerSupportCommunity.org
In July 2009, The Wellness Community and Gilda’s Club Worldwide joined forces to become the Cancer Support Community. The combined organization provides high-quality psychological and social support through a network of nearly 50 local affiliates, more than 100 satellite locations and online.
 
About the Amgen Foundation
The Amgen Foundation (www.amgen.com/citizenship/overview.html) seeks to advance science education; improve patient access to quality care; and strengthen the communities where Amgen staff members live and work. Since 1991, the Foundation has made nearly $180 million in grants to nonprofit organizations throughout the United States, Puerto Rico and Europe that impact society in inspiring and innovative ways, and those that provide disaster relief efforts both domestically and internationally.  The Amgen Foundation can be followed on twitter at www.twitter.com/AmgenFoundation.
 
###
 
CONTACT: 
Amgen
Lisa Slater, 805-447-6437 (media)
 
Cancer Support Community
Emily Martin, 410-693-8095 (media)


CSC Launches Open to Options

May 09, 2012

 

Share This:    
Cancer Support Community
CANCER SUPPORT COMMUNITY LAUNCHES NATIONAL PROGRAM
TO ASSIST PATIENTS WITH CANCER
MAKE INFORMED DECISIONS ABOUT CARE
 
Personalized Program Supported by the Amgen Foundation
Designed to Improve Doctor-Patient Dialogue
Open to Options Logo
WASHINGTON, D.C. and THOUSAND OAKS, Calif. (May 9, 2012) – The Cancer Support Community (CSC) and the Amgen Foundation today announced the national launch of  Open to OptionsTM, a program designed  to bridge the communications gap between physicians and patients and inspire patient confidence in making treatment decisions.  Open to Options provides professional counselors who work with patients to formulate a list of personalized questions and concerns to be taken into the oncologist’s office. 
 
“The number and complexity of options for treating cancer can be overwhelming for patients,” said Vicki Kennedy, Vice President of Program Development & Delivery at the CSC.  “The goal of Open to Options is to help people affected by all cancers evaluate their options so they can feel more confident and communicate clearly with their doctor so a decision is made that best fits their individual desires and goals.”
 
The Open to Options program is available through its Cancer Support Helpline at 
1-888-793-9355, through select affiliate locations and by visiting http://www.cancersupportcommunity.org/open2options.  The phone consultation is offered in both English and Spanish and takes approximately 45-60 minutes. 
 
“We are delighted to support the Open to Options program as part of our ongoing commitment to empowering patients to take an active role in their care,” said Jean Lim Terra, president of the Amgen Foundation.  “The resources that the Cancer Support Community provides individuals and families helps to ensure that those affected by cancer have the knowledge and support they need to make the right decisions at the right time.”
 
The program was created in response to CSC research that found the majority of patients feel unprepared to make informed decisions about their cancer care.  A CSC pilot study funded by the Centers for Disease Control and Prevention found that 9 out of 10 patients felt that the list of questions, concerns and expectations contributed to a more productive appointment with their doctor and that the oncologist answered most of their questions.  The study also showed:

• A decrease in anxiety about the appointment for most patients
• Repeat use of the tools and techniques learned
• Patient and physician satisfaction
 
“Open to Options helped me prioritize my questions and concerns in a concise, logical order to help me optimize my time with the oncologist,” said Trish H., a multiple myeloma patient who participated in the Open to Options pilot.  “When I went into his office, I had my concerns printed out and when I left the appointment I knew that I had decided on the treatment option that was right for me.”
 
About the Cancer Support Community
Backed by evidence that the best cancer care includes emotional and social support, the Cancer Support Community offers these services to all people affected by cancer. Likely the largest professionally-led network of cancer support worldwide, the organization delivers a comprehensive menu of personalized and essential services. Because no cancer care plan is complete without emotional and social support, the Cancer Support Community has a vibrant network of community-based centers and online services run by trained and licensed professionals. For more information, visit www.CancerSupportCommunity.org
In July 2009, The Wellness Community and Gilda’s Club Worldwide joined forces to become the Cancer Support Community. The combined organization provides high-quality psychological and social support through a network of nearly 50 local affiliates, more than 100 satellite locations and online.
 
About the Amgen Foundation
The Amgen Foundation (www.amgen.com/citizenship/overview.html) seeks to advance science education; improve patient access to quality care; and strengthen the communities where Amgen staff members live and work. Since 1991, the Foundation has made nearly $180 million in grants to nonprofit organizations throughout the United States, Puerto Rico and Europe that impact society in inspiring and innovative ways, and those that provide disaster relief efforts both domestically and internationally.  The Amgen Foundation can be followed on twitter at www.twitter.com/AmgenFoundation.
 
###
 
CONTACT: 
Amgen
Lisa Slater, 805-447-6437 (media)
 
Cancer Support Community
Emily Martin, 410-693-8095 (media)
 
Share This:    
Cancer Support Community
CANCER SUPPORT COMMUNITY LAUNCHES NATIONAL PROGRAM
TO ASSIST PATIENTS WITH CANCER
MAKE INFORMED DECISIONS ABOUT CARE
 
Personalized Program Supported by the Amgen Foundation
Designed to Improve Doctor-Patient Dialogue
Open to Options Logo
WASHINGTON, D.C. and THOUSAND OAKS, Calif. (May 9, 2012) – The Cancer Support Community (CSC) and the Amgen Foundation today announced the national launch of  Open to OptionsTM, a program designed  to bridge the communications gap between physicians and patients and inspire patient confidence in making treatment decisions.  Open to Options provides professional counselors who work with patients to formulate a list of personalized questions and concerns to be taken into the oncologist’s office. 
 
“The number and complexity of options for treating cancer can be overwhelming for patients,” said Vicki Kennedy, Vice President of Program Development & Delivery at the CSC.  “The goal of Open to Options is to help people affected by all cancers evaluate their options so they can feel more confident and communicate clearly with their doctor so a decision is made that best fits their individual desires and goals.”
 
The Open to Options program is available through its Cancer Support Helpline at 
1-888-793-9355, through select affiliate locations and by visiting http://www.cancersupportcommunity.org/open2options.  The phone consultation is offered in both English and Spanish and takes approximately 45-60 minutes. 
 
“We are delighted to support the Open to Options program as part of our ongoing commitment to empowering patients to take an active role in their care,” said Jean Lim Terra, president of the Amgen Foundation.  “The resources that the Cancer Support Community provides individuals and families helps to ensure that those affected by cancer have the knowledge and support they need to make the right decisions at the right time.”
 
The program was created in response to CSC research that found the majority of patients feel unprepared to make informed decisions about their cancer care.  A CSC pilot study funded by the Centers for Disease Control and Prevention found that 9 out of 10 patients felt that the list of questions, concerns and expectations contributed to a more productive appointment with their doctor and that the oncologist answered most of their questions.  The study also showed:

• A decrease in anxiety about the appointment for most patients
• Repeat use of the tools and techniques learned
• Patient and physician satisfaction
 
“Open to Options helped me prioritize my questions and concerns in a concise, logical order to help me optimize my time with the oncologist,” said Trish H., a multiple myeloma patient who participated in the Open to Options pilot.  “When I went into his office, I had my concerns printed out and when I left the appointment I knew that I had decided on the treatment option that was right for me.”
 
About the Cancer Support Community
Backed by evidence that the best cancer care includes emotional and social support, the Cancer Support Community offers these services to all people affected by cancer. Likely the largest professionally-led network of cancer support worldwide, the organization delivers a comprehensive menu of personalized and essential services. Because no cancer care plan is complete without emotional and social support, the Cancer Support Community has a vibrant network of community-based centers and online services run by trained and licensed professionals. For more information, visit www.CancerSupportCommunity.org
In July 2009, The Wellness Community and Gilda’s Club Worldwide joined forces to become the Cancer Support Community. The combined organization provides high-quality psychological and social support through a network of nearly 50 local affiliates, more than 100 satellite locations and online.
 
About the Amgen Foundation
The Amgen Foundation (www.amgen.com/citizenship/overview.html) seeks to advance science education; improve patient access to quality care; and strengthen the communities where Amgen staff members live and work. Since 1991, the Foundation has made nearly $180 million in grants to nonprofit organizations throughout the United States, Puerto Rico and Europe that impact society in inspiring and innovative ways, and those that provide disaster relief efforts both domestically and internationally.  The Amgen Foundation can be followed on twitter at www.twitter.com/AmgenFoundation.
 
###
 
CONTACT: 
Amgen
Lisa Slater, 805-447-6437 (media)
 
Cancer Support Community
Emily Martin, 410-693-8095 (media)
 
Share This:    
Cancer Support Community
CANCER SUPPORT COMMUNITY LAUNCHES NATIONAL PROGRAM
TO ASSIST PATIENTS WITH CANCER
MAKE INFORMED DECISIONS ABOUT CARE
 
Personalized Program Supported by the Amgen Foundation
Designed to Improve Doctor-Patient Dialogue
Open to Options Logo
WASHINGTON, D.C. and THOUSAND OAKS, Calif. (May 9, 2012) – The Cancer Support Community (CSC) and the Amgen Foundation today announced the national launch of  Open to OptionsTM, a program designed  to bridge the communications gap between physicians and patients and inspire patient confidence in making treatment decisions.  Open to Options provides professional counselors who work with patients to formulate a list of personalized questions and concerns to be taken into the oncologist’s office. 
 
“The number and complexity of options for treating cancer can be overwhelming for patients,” said Vicki Kennedy, Vice President of Program Development & Delivery at the CSC.  “The goal of Open to Options is to help people affected by all cancers evaluate their options so they can feel more confident and communicate clearly with their doctor so a decision is made that best fits their individual desires and goals.”
 
The Open to Options program is available through its Cancer Support Helpline at 
1-888-793-9355, through select affiliate locations and by visiting http://www.cancersupportcommunity.org/open2options.  The phone consultation is offered in both English and Spanish and takes approximately 45-60 minutes. 
 
“We are delighted to support the Open to Options program as part of our ongoing commitment to empowering patients to take an active role in their care,” said Jean Lim Terra, president of the Amgen Foundation.  “The resources that the Cancer Support Community provides individuals and families helps to ensure that those affected by cancer have the knowledge and support they need to make the right decisions at the right time.”
 
The program was created in response to CSC research that found the majority of patients feel unprepared to make informed decisions about their cancer care.  A CSC pilot study funded by the Centers for Disease Control and Prevention found that 9 out of 10 patients felt that the list of questions, concerns and expectations contributed to a more productive appointment with their doctor and that the oncologist answered most of their questions.  The study also showed:

• A decrease in anxiety about the appointment for most patients
• Repeat use of the tools and techniques learned
• Patient and physician satisfaction
 
“Open to Options helped me prioritize my questions and concerns in a concise, logical order to help me optimize my time with the oncologist,” said Trish H., a multiple myeloma patient who participated in the Open to Options pilot.  “When I went into his office, I had my concerns printed out and when I left the appointment I knew that I had decided on the treatment option that was right for me.”
 
About the Cancer Support Community
Backed by evidence that the best cancer care includes emotional and social support, the Cancer Support Community offers these services to all people affected by cancer. Likely the largest professionally-led network of cancer support worldwide, the organization delivers a comprehensive menu of personalized and essential services. Because no cancer care plan is complete without emotional and social support, the Cancer Support Community has a vibrant network of community-based centers and online services run by trained and licensed professionals. For more information, visit www.CancerSupportCommunity.org
In July 2009, The Wellness Community and Gilda’s Club Worldwide joined forces to become the Cancer Support Community. The combined organization provides high-quality psychological and social support through a network of nearly 50 local affiliates, more than 100 satellite locations and online.
 
About the Amgen Foundation
The Amgen Foundation (www.amgen.com/citizenship/overview.html) seeks to advance science education; improve patient access to quality care; and strengthen the communities where Amgen staff members live and work. Since 1991, the Foundation has made nearly $180 million in grants to nonprofit organizations throughout the United States, Puerto Rico and Europe that impact society in inspiring and innovative ways, and those that provide disaster relief efforts both domestically and internationally.  The Amgen Foundation can be followed on twitter at www.twitter.com/AmgenFoundation.
 
###
 
CONTACT: 
Amgen
Lisa Slater, 805-447-6437 (media)
 
Cancer Support Community
Emily Martin, 410-693-8095 (media)
 
Share This:    
Cancer Support Community
CANCER SUPPORT COMMUNITY LAUNCHES NATIONAL PROGRAM
TO ASSIST PATIENTS WITH CANCER
MAKE INFORMED DECISIONS ABOUT CARE
 
Personalized Program Supported by the Amgen Foundation
Designed to Improve Doctor-Patient Dialogue
Open to Options Logo
WASHINGTON, D.C. and THOUSAND OAKS, Calif. (May 9, 2012) – The Cancer Support Community (CSC) and the Amgen Foundation today announced the national launch of  Open to OptionsTM, a program designed  to bridge the communications gap between physicians and patients and inspire patient confidence in making treatment decisions.  Open to Options provides professional counselors who work with patients to formulate a list of personalized questions and concerns to be taken into the oncologist’s office. 
 
“The number and complexity of options for treating cancer can be overwhelming for patients,” said Vicki Kennedy, Vice President of Program Development & Delivery at the CSC.  “The goal of Open to Options is to help people affected by all cancers evaluate their options so they can feel more confident and communicate clearly with their doctor so a decision is made that best fits their individual desires and goals.”
 
The Open to Options program is available through its Cancer Support Helpline at 
1-888-793-9355, through select affiliate locations and by visiting http://www.cancersupportcommunity.org/open2options.  The phone consultation is offered in both English and Spanish and takes approximately 45-60 minutes. 
 
“We are delighted to support the Open to Options program as part of our ongoing commitment to empowering patients to take an active role in their care,” said Jean Lim Terra, president of the Amgen Foundation.  “The resources that the Cancer Support Community provides individuals and families helps to ensure that those affected by cancer have the knowledge and support they need to make the right decisions at the right time.”
 
The program was created in response to CSC research that found the majority of patients feel unprepared to make informed decisions about their cancer care.  A CSC pilot study funded by the Centers for Disease Control and Prevention found that 9 out of 10 patients felt that the list of questions, concerns and expectations contributed to a more productive appointment with their doctor and that the oncologist answered most of their questions.  The study also showed:

• A decrease in anxiety about the appointment for most patients
• Repeat use of the tools and techniques learned
• Patient and physician satisfaction
 
“Open to Options helped me prioritize my questions and concerns in a concise, logical order to help me optimize my time with the oncologist,” said Trish H., a multiple myeloma patient who participated in the Open to Options pilot.  “When I went into his office, I had my concerns printed out and when I left the appointment I knew that I had decided on the treatment option that was right for me.”
 
About the Cancer Support Community
Backed by evidence that the best cancer care includes emotional and social support, the Cancer Support Community offers these services to all people affected by cancer. Likely the largest professionally-led network of cancer support worldwide, the organization delivers a comprehensive menu of personalized and essential services. Because no cancer care plan is complete without emotional and social support, the Cancer Support Community has a vibrant network of community-based centers and online services run by trained and licensed professionals. For more information, visit www.CancerSupportCommunity.org
In July 2009, The Wellness Community and Gilda’s Club Worldwide joined forces to become the Cancer Support Community. The combined organization provides high-quality psychological and social support through a network of nearly 50 local affiliates, more than 100 satellite locations and online.
 
About the Amgen Foundation
The Amgen Foundation (www.amgen.com/citizenship/overview.html) seeks to advance science education; improve patient access to quality care; and strengthen the communities where Amgen staff members live and work. Since 1991, the Foundation has made nearly $180 million in grants to nonprofit organizations throughout the United States, Puerto Rico and Europe that impact society in inspiring and innovative ways, and those that provide disaster relief efforts both domestically and internationally.  The Amgen Foundation can be followed on twitter at www.twitter.com/AmgenFoundation.
 
###
 
CONTACT: 
Amgen
Lisa Slater, 805-447-6437 (media)
 
Cancer Support Community
Emily Martin, 410-693-8095 (media)
 
CANCER SUPPORT COMMUNITY LAUNCHES NATIONAL PROGRAM
TO ASSIST PATIENTS WITH CANCER
MAKE INFORMED DECISIONS ABOUT CARE
 
Personalized Program Supported by the Amgen Foundation
Designed to Improve Doctor-Patient Dialogue
 
 
WASHINGTON, D.C. and THOUSAND OAKS, Calif. (May 9, 2012) – The Cancer Support Community (CSC) and the Amgen Foundation today announced the national launch of  Open to OptionsTM, a program designed  to bridge the communications gap between physicians and patients and inspire patient confidence in making treatment decisions.  Open to Options provides professional counselors who work with patients to formulate a list of personalized questions and concerns to be taken into the oncologist’s office. 
 
“The number and complexity of options for treating cancer can be overwhelming for patients,” said Vicki Kennedy, Vice President of Program Development & Delivery at the CSC.  “The goal of Open to Options is to help people affected by all cancers evaluate their options so they can feel more confident and communicate clearly with their doctor so a decision is made that best fits their individual desires and goals.”
 
The Open to Options program is available through its Cancer Support Helpline at 
1-888-793-9355, through select affiliate locations and by visiting http://www.cancersupportcommunity.org/open2options.  The phone consultation is offered in both English and Spanish and takes approximately 45-60 minutes. 
 
“We are delighted to support the Open to Options program as part of our ongoing commitment to empowering patients to take an active role in their care,” said Jean Lim Terra, president of the Amgen Foundation.  “The resources that the Cancer Support Community provides individuals and families helps to ensure that those affected by cancer have the knowledge and support they need to make the right decisions at the right time.”
 
The program was created in response to CSC research that found the majority of patients feel unprepared to make informed decisions about their cancer care.  A CSC pilot study funded by the Centers for Disease Control and Prevention found that 9 out of 10 patients felt that the list of questions, concerns and expectations contributed to a more productive appointment with their doctor and that the oncologist answered most of their questions.  The study also showed:
 
• A decrease in anxiety about the appointment for most patients
• Repeat use of the tools and techniques learned
• Patient and physician satisfaction
 
“Open to Options helped me prioritize my questions and concerns in a concise, logical order to help me optimize my time with the oncologist,” said Trish H., a multiple myeloma patient who participated in the Open to Options pilot.  “When I went into his office, I had my concerns printed out and when I left the appointment I knew that I had decided on the treatment option that was right for me.”
 
About the Cancer Support Community
Backed by evidence that the best cancer care includes emotional and social support, the Cancer Support Community offers these services to all people affected by cancer. Likely the largest professionally-led network of cancer support worldwide, the organization delivers a comprehensive menu of personalized and essential services. Because no cancer care plan is complete without emotional and social support, the Cancer Support Community has a vibrant network of community-based centers and online services run by trained and licensed professionals. For more information, visit www.CancerSupportCommunity.org. 
In July 2009, The Wellness Community and Gilda’s Club Worldwide joined forces to become the Cancer Support Community. The combined organization provides high-quality psychological and social support through a network of nearly 50 local affiliates, more than 100 satellite locations and online.
 
About the Amgen Foundation
The Amgen Foundation (www.amgen.com/citizenship/overview.html) seeks to advance science education; improve patient access to quality care; and strengthen the communities where Amgen staff members live and work. Since 1991, the Foundation has made nearly $180 million in grants to nonprofit organizations throughout the United States, Puerto Rico and Europe that impact society in inspiring and innovative ways, and those that provide disaster relief efforts both domestically and internationally.  The Amgen Foundation can be followed on twitter at www.twitter.com/AmgenFoundation.
 
 
 
 

CANCER SUPPORT COMMUNITY LAUNCHES NATIONAL PROGRAM
TO ASSIST PATIENTS WITH CANCER
MAKE INFORMED DECISIONS ABOUT CARE
 
Personalized Program Supported by the Amgen Foundation
Designed to Improve Doctor-Patient Dialogue
 
 
WASHINGTON, D.C. and THOUSAND OAKS, Calif. (May 9, 2012) – The Cancer Support Community (CSC) and the Amgen Foundation today announced the national launch of  Open to OptionsTM, a program designed  to bridge the communications gap between physicians and patients and inspire patient confidence in making treatment decisions.  Open to Options provides professional counselors who work with patients to formulate a list of personalized questions and concerns to be taken into the oncologist’s office. 
 
“The number and complexity of options for treating cancer can be overwhelming for patients,” said Vicki Kennedy, Vice President of Program Development & Delivery at the CSC.  “The goal of Open to Options is to help people affected by all cancers evaluate their options so they can feel more confident and communicate clearly with their doctor so a decision is made that best fits their individual desires and goals.”
 
The Open to Options program is available through its Cancer Support Helpline at 
1-888-793-9355, through select affiliate locations and by visiting http://www.cancersupportcommunity.org/open2options.  The phone consultation is offered in both English and Spanish and takes approximately 45-60 minutes. 
 
“We are delighted to support the Open to Options program as part of our ongoing commitment to empowering patients to take an active role in their care,” said Jean Lim Terra, president of the Amgen Foundation.  “The resources that the Cancer Support Community provides individuals and families helps to ensure that those affected by cancer have the knowledge and support they need to make the right decisions at the right time.”
 
The program was created in response to CSC research that found the majority of patients feel unprepared to make informed decisions about their cancer care.  A CSC pilot study funded by the Centers for Disease Control and Prevention found that 9 out of 10 patients felt that the list of questions, concerns and expectations contributed to a more productive appointment with their doctor and that the oncologist answered most of their questions.  The study also showed:
 
• A decrease in anxiety about the appointment for most patients
• Repeat use of the tools and techniques learned
• Patient and physician satisfaction
 
“Open to Options helped me prioritize my questions and concerns in a concise, logical order to help me optimize my time with the oncologist,” said Trish H., a multiple myeloma patient who participated in the Open to Options pilot.  “When I went into his office, I had my concerns printed out and when I left the appointment I knew that I had decided on the treatment option that was right for me.”
 
About the Cancer Support Community
CSC Named #6 Most Impactful Non-Profit in the Field of Cancer CareJanuary 09, 2012

 


The Cancer Support Community is honored to be recognized by Philanthropedia, a Guidestar organization, as the 6th most high-impact non-profit working in the field of cancer in the U.S. Philanthropedia surveyed 46 experts to identify 16 top non-profits -- out of 73 reviewed -- making an impact in cancer care at the national level.

Experts praised CSC for our work in providing valuable education and support programming and for being at the forefront of psychosocial research: 

There is no other organization I trust more in regards to the psychosocial impact of cancer. Their programs are very professional and compassionate.”

“The Cancer Support Community provides credible information and a safe environment for patients across the country. In addition, their leadership in survivorship research is unparalleled.”

“The Cancer Support Community has filled an important role in the cancer field by addressing psychosocial and mental health issues. They have also made valuable information available to cancer patients.”


The recent release of the Breast Cancer M.A.P. Index affirms the importance of our work supporting people impacted by cancer throughout each stage of the cancer experience.  

Several experts referenced the high-quality resources CSC makes available through our Frankly Speaking About Cancer educational series. 18 informative publications are available via our online catalogue, free of charge for anyone facing a cancer diagnosis.  In fact, all of our services and programs are provided at no cost to any person impacted by cancer. Through our global network of affiliates, CSC will continue to provide support services through professionally-led programs, in print, over the phone and online, so that no one has to face cancer alone. 


*Philanthropedia (at Guidestar) is a nonprofit organization working to help donors make smarter donations by connecting them with some of the highest impact nonprofits in a cause. They are different from other online rating sites or donation sites because they use experts to identify high-impact nonprofits


CSC Hosts National Cancer Summitt

January 06, 2012

 

CSC Hosts National Cancer Summit on 2007 IOM Report, Cancer Care for the Whole Patient




On November 5th, the Cancer Support Community hosted it’s biennial National Cancer Summit in Washington, DC to detail national progress made towards implementing recommendations in the Institute of Medicine’s (IOM) 2007 report; Cancer Care for the Whole Patient: Meeting Psychosocial Health Needs. The Summit was moderated by Susan Dentzer, editor-in-chief of Health Affairs and on-air analyst on health issues with the PBS NewsHour, and featured some of the most respected leaders in the cancer community. These panelists included Dr. Roger C. Herdman, Director of the Board on Health Care Services, at the Institute of Medicine, Dr. Stephen B. Edge, Chair of the American College of Surgeons Commission on Cancer and Dr. Allen S. Lichter, Chief Executive Officer of the American Society of Clinical Oncology. 


As the health care community is becoming increasingly aware that psychosocial care is as important as medical care in the face of a cancer diagnosis, these panelists addressed what their respective organizations are doing to advance patient-centered care in the face of a cancer diagnosis, specifically addressing social and emotional needs. They also spoke of the many gaps that still need to be bridged, including incorporating practices like distress screening and survivorship care planning into quality cancer care.  


The panelists spoke to an esteemed crowd of representatives from CSC affiliates, members of the advocacy community and leaders from non-profit and other cancer organizations. The Summit also featured an exhibit where non-profit organizations from across the country showcased their many achievements and initiatives in advancing quality care for those living with cancer. 


Prior to the Summit, attendees spent a fun evening at a “Motown” themed party which featured a live band a great chance for leaders in the cancer community to connect and have fun! Be sure to check out our facebook albums below for pictures from the events!


CSC Announces New Findings in Breast Cancer Survivorship through Inaugural M.A.P. Index

January 06, 2012

  

New CSC Data From Breast Cancer Survivors Shows Social & Emotional 

Issues are not Adequately Addressed

 

WASHINGTON, DC, October 11, 2011 – New data collected from more than 1,000 breast cancer survivors finds that many experience significant social and emotional issues not adequately addressed by the current standard of care. The research indicates high levels of distress among breast cancer survivors and minimal awareness of tools and programs designed to improve communication between patients and physicians when weighing a patient’s treatment options. Survey participants also reported that plans intended to improve coordination between multiple care teams were rarely implemented. These findings are outlined in an inauguralBreast Cancer M.A.P. Index, released today by the Cancer Support Community (CSC), a non-profit organization dedicated to ensuring that social and emotional support are critical, integrated components of complete cancer care, through original peer-reviewed research, personalized support and education services. 

CSC’s Research and Training Institute surveyed 1,043 breast cancer survivors as part of its Breast Cancer M.A.P. (Mind Affects the Physical) Project. The goal was to better understand three key areas of their psychosocial needs: patient-physician communication when making treatment decisions, screening for social and emotional distress and the role of survivorship care plans post-treatment. CSC and its 21-member Advisory Council analyzed the statistically significant data, generating new insights into the social and emotional experiences and needs of breast cancer survivors. The M.A.P. Project was supported by generous grants from The Breast Cancer Fund of National Philanthropic Trust with additional support from Susan G. Komen for the Cure.

“We have made extraordinary advances in the treatment of breast cancer but it’s clear from these findings that the full spectrum of care isn’t currently being delivered to survivors,” said Lidia Schapira, M.D., Assistant Professor, Department of Medicine, Harvard Medical School, Massachusetts General Hospital and M.A.P. Project advisor.  “We hope this report encourages the cancer community to pursue a renewed focus on providing social and emotional support to people with breast cancer, and improve the standard of care for the growing survivor population.”

Highlights from the data include:

Communication Around Treatment Decisions
The majority of patients surveyed felt unprepared for arguably the most important conversation following a breast cancer diagnosis—discussion of cancer treatment options with their doctor.
  • 75 percent of respondents reported that it is highly important to receive 
    help gathering informational materials before the first meeting with a 
    specialist
  • However, only 15 percent reported that their physician or specialist provided them with materials before their first visit after being diagnosed with breast cancer
  • Less than half, 48 percent, were not fully satisfied with the questions they 
    asked during the initial visit with a breast cancer specialist

Survivorship Care Planning
A survivorship care plan (SCP) is a tool designed to include treatment and other clinical details that are critical to an individual's long-term care. The intent is to improve communication between patients and their various care providers to ensure a comprehensive and coordinated approach to cancer care after treatment ends. SCP’s are the central recommendation of a 2005 report from the Institute of Medicine, yet M.A.P. Project data show the implementation of SCPs into the standard of care is virtually non-existent and patient awareness is low, despite high-demand from survivors.

  • 90 percent of survivors surveyed did not receive a SCP
  • Of the survivors who did not receive a SCP, 96 percent report that they would have liked to receive 
    one
  • Of the survivors who did receive a SCP, 71 percent found the plan to be 
    useful or very useful

Screening for Social and Emotional Distress 
Distress screening is a systematic process in which cancer survivors are asked by their health care providers about problems that may be causing them anguish. In the United States, 85 percent of cancer patients are treated in a community setting, where distress screening is largely non-existent. The M.A.P. Project data indicate most cancer patients experience distress that is often overlooked, especially as patients transition from active treatment to survivorship care[i].

  • 87 percent of respondents rated at least one social, physical or emotional 
    issue as a moderate to very severe problem
  • The most frequent causes of distress, as reported by survivors, include: fatigue, sexual dysfunction, and sleep issues
  • Conditions most frequently associated with distress were depression and 
    co-morbidities (when a patient is faced with two or more conditions or diseases)

Study findings suggest the need to begin distress screening at the moment of diagnosis to improve health outcomes for survivors. 

“I’m extremely proud of the Institute’s work that takes the vision of the Cancer Support Community one step further, helping to advance our understanding of the social and emotional needs of survivors,” said Kim Thiboldeaux, president and CEO of the Cancer Support Community. “These insights will inform CSC’s development of resources and programs to improve the experience of people with breast cancer from the point of diagnosis through long-term survivorship. We are excited to be sharing these inaugural findings with the cancer community and look forward to continued research examining the needs of this growing population for years to come.”

“The Breast Cancer M.A.P. Index is a tremendous opportunity for breast cancer survivors to participate in a community and be of service to others who may face this disease in the future,” said Ambassador Nancy G. Brinker, founder and CEO of Susan G. Komen for the Cure. “The Index is allowing us to identify gaps that can lead to better treatment support and aftercare going forward. I’d encourage all of my fellow survivors to read the Index, and participate in ongoing surveys.”

With generous support from the Breast Cancer Fund of National Philanthropic Trust and Susan G. Komen for the Cure, CSC’s Research & Training Institute is continuing to recruit breast cancer survivors to join the M.A.P. Project. By joining this unique registry and sharing their breast cancer experience, survivors have a unique opportunity to help researchers better understand the full impact of breast cancer and ultimately influence the development of innovative ways to improve the cancer experience for millions. Survivors interested in participating in the M.A.P. Project may join online at www.breastcancerregistry.org or call 1-888-MAP-CSC9 (1-888-627-2729).  Anyone interested in learning more about the registry should visit the website for additional information.

To access the Institute’s full Breast Cancer M.A.P. Index, visit:
www.cancersupportcommunity.org/breastcancermap  

Cancer Support Community Resources For Those Impacted by Breast Cancer
CSC’s acclaimed educational series, Frankly Speaking About Cancer, provides valuable cancer information with a focus on emotional and social support. Through informative booklets, professionally-led workshops, tailored web content and a weekly Internet radio show, Frankly Speaking About Cancer addresses a variety of cancer-related topics, and is available at no cost to individuals affected by cancer. Publications specific to breast cancer include:

  • Frankly Speaking About Cancer: Advanced Breast Cancer
  • Frankly Speaking About Cancer: Breast Reconstruction
  • Frankly Speaking About Cancer: When a Women You Care About Has Breast Cancer
  • Frankly Speaking About Cancer: Cuidador a Cuidador (From Caregiver to Caregiver)


About the Cancer Support Community’s Research and Training Institute 
The first Institute in the United States dedicated to psychosocial, behavioral and survivorship research and training in cancer, this dedicated group examines the critical role of social and emotional support for those living with cancer.  The Institute’s peer-reviewed research on the distinctive needs of survivors and caregivers throughout each phase of the cancer experience, informs CSC’s patient and caregiver forums, retreats and state-of-the-art training programs for health care professionals.

About the Cancer Support Community
Backed by evidence that the best cancer care includes emotional and social support, the Cancer Support Community offers these services to all people affected by cancer. Likely the largest professionally-led network of cancer support worldwide, the organization delivers a comprehensive menu of personalized and essential services. Because no cancer care plan is complete without emotional and social support, the Cancer Support Community has a vibrant network of community-based centers and online services run by trained and licensed professionals. 

In July 2009, The Wellness Community and Gilda’s Club joined forces to become the Cancer Support Community. The combined organization provides the highest quality psychological and social support through a network of more than 50 local affiliates, 100 satellite locations and online.

For up-to-date information on the organization’s resources and ongoing initiatives, including the Cancer Support Community’s National Cancer Summit taking place November 5, 2011 in Washington, D.C., visitwww.cancersupportcommunity.org, follow CSC on Twitter or “like” CSC on Facebook.  

Contact: 
Jennefer Witter
The Boreland Group
(718) 543-1503
Jwitter@theborelandgroup.com 

Regan Hiatt
Cancer Support Community 
(646) 600-7563 
regan@cancersupportcommunity.org

                                                                               #  #  # 


Panera Bread of Kansas Donates over $32,000 to Gilda’s Club of Kansas City

November 30, 2011

 

Panera Bread of Kansas Donates over $32,000 to Gilda’s Club of Kansas City
4th Annual Swing for Life Golf Tournament and Pink Ribbon Bagel Sales Help Support Gilda’s Club

 

Prairie Village, Kansas – Panera Bread of Kansas, with 23 Kansas City metro locations, 4 in Wichita and additional locations in Lawrence, Manhattan, Topeka and St. Joseph, was proud to support Breast Cancer Awareness during the month of October. The 4th Annual Swing for Life Golf Tournament was held at Leawood South Country Club on October 10th, 2011.

Through sponsorships, entry fees, mulligan sales, raffle tickets and in-kind donations the one day event raised over $25,000 to be donated to Gilda’s Club of Kansas City, an organization that provides networking and support activities to cancer patients.

In addition to the Golf Tournament proceeds, Panera Bread of Kansas also donated 10 cents from every Pink Ribbon Bagel sold and $1.00 from every baker’s dozen sold during the month of October to Gilda’s Club of Kansas City. Because of the amazing support of our customers, the sales of the Pink Ribbon Bagels and baker’s dozen added another $7,300 for the charity for a grand total of $32, 965.83 to be donated.

Gilda’s Club of Kansas City, an affiliate of The Cancer Support Community, opened its clubhouse near the Country Club Plaza in October. It is named for and inspired by comedian Gilda Radner of “Saturday Night Live” fame, who died of ovarian cancer in 1989. The core components of Gilda’s Club are support, education, healthy lifestyle, social connection and resources and referral. All programs are free of charge.

According to Vanessa Finley, Executive Director for Gilda’s Club of Kansas City, “This very generous donation from Panera Bread will go towards providing emotional and social support to people in the Kansas City area who have been impacted by any type of cancer. Specifically, this contribution will cover a portion of the annual costs of providing two critical components of the full Gilda’s Club Program. The first is the Healthy Lifestyle component where members participate in a variety of nutrition activities. The second component is Noogieland, the children’s program that provides a warm, supportive environment for children whose lives are affected by cancer in some way.”

About Panera Bread of Kansas

Panera Bread of Kansas operates 31 bakery-café locations in both Kansas and Missouri, including the Kansas City metro area, Wichita, Topeka, Lawrence, Manhattan and St. Joseph. Coming soon to Derby, KS, Brookside, KCMO and Sedalia, MO.

Founded in 1993, Panera Bread of Kansas takes pride in providing great customer service from friendly associates who offer an “everyday oasis” for valued guests. For more information, please visit www.panerakansas.com.   

 


CSC Named #6 Most Impactful Non-Profit in the Field of Cancer Care

October 27, 2011

Cancer Support Community Named #6 Most Impactful Non-Profit in the Field of Cancer Care

Gilda's Club Kansas City is an affiliate of the Cancer Support Community (CSC) and is honored to announce that CSC has been recognized by Philanthropedia, a Guidestar organization, as the 6th most high-impact non-profit working in the field of cancer in the U.S.

Read more about this recognition on our headquarter's webpage.


Buy Pink Ribbon Bagels at Panera Bread and Support Gilda's Club KC!

October 01, 2011

The 31 Panera Bread locations in the KC Metro Area, Wichita, Topeka, Lawrence, Manhattan, and St. Joseph are celebrating the tenth anniversary of their Pink Ribbon Bagel campaign, which has raised $1 million for breast cancer charities.

This year, Gilda's Club Kansas City has been chosen as the benefiting charity. For every baker's dozen of the Pink Ribbon Bagels you purchase in October, one dollar will be donated to Gilda's Club KC! They will also donate ten cents of every single Pink Ribbon Bagel sold.

What a delicious way to support Gilda's Club Kansas City. For more information, visit Panera Bread's community events website page


Golfers Weather the Heat to Golf Fore Gilda

July 19, 2011

The sun was shining bright and smiles abounded as 120 registered golfers teed off to support Gilda's Club Kansas City on Monday, July 18th. To view select pictures of the day, please visit our Facebook photo album. To see ALL the pictures and/or to download them in high-resolution, feel free to peruse our Flickr set.

Thank you to all who supported this fun event at Creekmoor Golf Course!


Gilda's Club KC selected as charity partner by Outdoor Living Show Home

May 10, 2011

Gilda's Club Kansas City is proud to announce a partnership with the Outdoor Living Show Home! Learn about today's shift from house size to house performance, and about the ever-increasing shift toward outdoor living. As a charity partner, Gilda's Club KC is working with Forner - La Voy Builders, Rockwood Falls, and the Will To Succeed Foundation, as they provide a unique opportunity for you to experience what it is like designing and building your own custom home! 

Follow along with the homeowners, and we will take you inside the construction process as we chronicle each step, with both pictures and narrative. Plenty of tips, insight, and know-how await, whether you are considering a new home, a remodel, or just have an interest in the home building process.

Follow along at the Outdoor Living Show Home's website www.OutdoorLivingShowHome.com. And in July of 2011, you'll get to actually tour the home and help a great local charity -- Gilda's Club Kansas City!

Click here for tour dates and times.


Giggle with Gilda 2011 - "I was laughing so hard my cheeks hurt!"

April 18, 2011

Giggle with Gilda - April 16, 2011

Giggle with Gilda 2011 starring The Second City National Touring Comany and featuring Kansas City's own Saturday Night Live star Jason Sudeikis was a great success! More than 1400 people attended the event at The Midland by AMC. Surprise guests George Wendt and Kim Kazurinsky arrived in time to help with the raffle drawing for tickets to see Saturday Night Live in New York and Second City in Chicago. It was a great night of fun and laughter for a great cause - Gilda's Club KC!

To view pictures from the night, check out the Gilda's Club KC Flickr page or the Gilda's Club KC Facebook page.

Thank you to everyone who attended. A very special thank you to our Giggle with Gilda sponsors:

GIGGLE SPONSORS

HCA Midwest Health Systems

Lathrop & Gage LLP

MarketSphere Consulting LLC

The Midland by AMC

Dr. Bill Smith, Director of Breast Imaging, Univ. of KS Hospital

 

SMILE SPONSORS

Barkley

Cancer Treatment Centers of America

Cosentino’s Downtown Market

Craig Sole Designs

Genentech Inc.

Joni & Chuck Etherington

Marlene & Mike Fishman

Kain-McArthur Inc.

The Q Hotel

Saint Luke’s Cancer Institute

VML Foundation

 

MEDIA SPONSORS

FUNNY 102.5

KCPT-TV

 

ADDITIONAL CONTRIBUTORS

The Belden-Stratford Hotel & Suites

Big Foot Creative

Carey of KC, Kansas City Transportation Group

ComedyCity

Country Club Bank

Drunken Fish

Fiorella’s Jack Stack Barbecue

Frontier Airlines

Jeff Hoffman, ColorJar

Improv Thunderdome

Todd Lamanske, Magician

The Last Tangle Salon

Lockton Cos. LLC

Marc Moreano Foundation

The Roasterie

Debbie Sauer Photography

Smart Cookies Bakery

Tenman Design

Trabon Cos.

Treat America Food Services

US Bank

Steve & Marta Williamson

Henry Wurst Inc.


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